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How Others Feel to Have the Disorder

What happens when we have a seizure? We lose control of our bodies. This is what happens to someone every time a person has a seizure. Such a person has no way to stop the seizures, is unable to stand up, to speak or once the seizure is over, to remember what happened. Imagine trying to get through life having to live with the constant fear of when and where your next seizure will occur.

Having to cope each day with these unsettling emotions is tough. Emotions such as fear, anxiety, and anger build up inside until you cannot deal with them any longer. Many people with epilepsy feel as though they are alone. They feel they are trying to battle the disorder all by themselves. People, who do not have the disorder, ask me “How can they feel they are battling epilepsy alone when they have doctors, family and friends to comfort them?” To live with the disorder, one needs to communicate with people who have the same disorder. It gives you the opportunity to open your heart and share your unsettled emotions about how it feels to have epilepsy.

One way of doing this is to subscribe to Epilepsy USA. The Epilepsy Foundation writes this magazine. They send it to you every two months once you become a member. The magazine informs you about what is going on with epilepsy. It has a section where it lists addresses of others with epilepsy that are looking for pen pals. The magazine also tells you about different events around the states that are constantly going on that you can participate in. For information, you can write to the main Epilepsy Foundation in Maryland.

The address is:

4351 Garden City Drive

Landover, MD 20785

If you do not already subscribe to this magazine, I strongly suggest that you begin to. It is one way to help give yourself encouragement so you can focus on your life and look at epilepsy in a positive way.

This is important because one can easily become depressed focusing on the negative aspects of epilepsy and wallowing in self-pity. This is why support from other individuals who suffer from the same disorder is so important. Understanding what someone with the disorder goes through is difficult, if you do not experience it yourself.
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