Our site is dedicated to providing the most reliable, complete, and up-to-date information about epilepsy. Our mission is to help people with epilepsy and their loved ones make sense of this complex disorder. Our site provides information about epilepsy, so people with epilepsy can make the best decisions for their lives. We are raising awareness and support.
Subscribe to this blog
Follow by Email
Search This Blog
An Inspirational Epilepsy Story - The Muller Family
The Sun Shines Brightly Over The Muller Household
The cause of Liz Muller's over 20 years of seizure history is still a mystery. When she was five years old, she fell backwards off a porch about two or three feet and hit her head on a brick. The brick broke and she was given stitches for a large scalp laceration. She healed in the normal amount of time without any complications.
By the time Liz entered fifth grade she remembers having an aura similar to a deja vu or a "feeling like being there before."
Sometimes she felt nausea too. However, those were the only unusual feelings she experienced. Her studies went well and she went on to become a special education teacher for 19 years.
One day in 1980, Liz experienced her first big tonic clonic seizure while standing before her students. She says, "I didn't know what to make of it. Instantly, my world was changed as a result of it. From that point on, I just remember visits to the neurologists and taking a lot of medications."
Ironically, many of her students experienced seizures too. Fortunately, Liz was able to keep her job and most of her seizures occurred at night. She says, "I'd wake up tired and feeling sluggish. But, I was always ready to teach."
Four years before her first seizure, Liz met Marcus Muller, a paramedic with the San Marino Fire Department. It was a magnetic meeting for both of them. Soon after, they were married. Eight years later their beautiful daughter, Kellie arrived.
During most of these years Liz's seizures were well managed with anti-epileptic medications. Once in awhile she would have a break through seizure but nothing of serious concern.
Then, a few years ago, Liz's seizures grew worse and became unmanageable. Her life became one doctor's visit after another with several anti epileptic medications prescribed. She tried a total of eight medications without success.
Her spirits plummeted and she felt "life wasn't worth living like this." She was losing her sense of independence and Liz didn't know what to expect next.
In March of 1999, Marc's dad saw a feature news article in the Los Angeles Times on the Epilepsy and Brain Mapping Program at Huntington Memorial Hospital.
Marcus and her family encouraged her to take the necessary steps to determine if she would be a candidate for surgery. After a series of image tests, Liz was admitted to the Hospital for a seven day stay evaluation of the origin, type and extent of her seizures. Then, Liz was admitted to the hospital for another 20 days during a Phase II observation and finally another six days for Phase III.
Although her hospital stays were grueling, Liz and Marcus both say, "The nurses were wonderful with their words of encouragement. The volunteers were very helpful in bringing her the therapy dog to snuggle with."
After five hours of surgery performed by Dr. Adam Mamelak, she says, "I feel it was all worth it. My recovery took almost a full year, but I am now free of seizures and medications. The sun shines a whole lot brighter over us. I thank our Pastor, John Sims for his tremendous encouragement and I know all of our prayers were answered."
In addition to treasuring her "new life," Liz is now an active soccer mom and a volunteer at Huntington Hospital.
Image via Wikipedia
Continuous spike-wave in slow wave sleep syndrome (CSWS) is a rare epilepsy syndrome in which children lose a wide range of developmental abilities, including language, motor skills, memory, and visuospatial skills. This syndrome occurs in school-aged children. Development prior to onset of CSWS may be normal, but children with CSWS often have some pre-existing learning difficulties. In many children there is no known cause of epilepsy, although some children are found to have abnormal brain formation or have a prior history of brain infection. We still do not understand how these structural changes result in the continuous EEG discharge.
Many, but not all, children with CSWS also have seizures. There can be many different seizure types, including absence, generalized tonic-clonic, and focal seizures. The seizures can be difficult to treat. Even in those who already had learning difficulties, there is a clear loss of skills across multiple deve…
Image via Wikipedia Image by icethim via Flickr
If you aren’t getting enough vitamin B12, it is indeed very important –
and you may very well not be thinking about it. One reason you aren’t
thinking about it is that we tend to fall in (and out!) of love with one
nutrient at a time (such as vitamin C, beta carotene, lycopene and so
on), and vitamin B12 isn’t the nutrient du jour. But the other reason
you may not be thinking about it is … because you can’t. A deficiency of
vitamin B12 can limit your ability to think clearly about anything!
(More on that momentarily.)
Like all vitamins, B12 is an organic compound, made from carbons (as
opposed to minerals, which are inorganic), and essential for our normal
metabolic function and health. Also, like most vitamins, B12 plays a
wide variety of roles in our metabolism. The short list of important
effects B12 has on your health includes these: Vitamin B12 is essential for the manufacture of red blood cells; a deficiency leads to a cha…
This fact sheet provides basic information about aloe vera—common names,
uses, potential side effects, and resources for more information. Aloe
vera's use can be traced back 6,000 years to early Egypt, where the
plant was depicted on stone carvings. Known as the "plant of
immortality," aloe was presented as a burial gift to deceased pharaohs.
What Aloe Vera Is Used ForTraditionally, aloe was used topically to heal wounds and for various skin conditions, and orally as a laxative.Today, in addition to traditional uses, people take aloe orally to
treat a variety of conditions, including diabetes, asthma, epilepsy, and
osteoarthritis. People use aloe topically for osteoarthritis, burns,
sunburns, and psoriasis.Aloe vera gel can be found in hundreds of skin products, including lotions and sunblocks.The Food and Drug Administration (FDA) has approved aloe vera as a natural food flavoring. Aloe vera ...Lô Hội, Nha Đam..#1 (Photo credit: Vietnam Plants &…