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Epilepsy Foundation is interested in gathering information about people that have a history of seizures

We Need Your Help - Take the Survey


Dear Friend of ETP,

Epilepsy Foundation is interested in gathering information about people that have a history of seizures (current or in the past) AND are living with one or more of the following rare conditions:
  • Aicardi Syndrome
  • Dravet Syndrome
  • Hypothalamic Hamartoma
  • Infantile Spasms or West Syndrome
  • Lennox-Gaustaut Syndrome
  • Phelan-McDermid
  • Rasmussen’s Encephalopathy
  • Tuberous Sclerosis
  • Dup15Q Syndrome
We need as many families participating as possible! Please complete a brief survey to help us gather initial information. Your answers will be kept confidential and will only be shared with those working on a grant proposal to create an overview of each patient population. After completing the survey, you will also have the option to share your information with the Foundation so that we may contact you about the results of the grant submission as well as any future research projects.

Thank you for your participation!
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